THE ROCKY MOUNTAIN PATIENT / FAMILY SUPPORT NETWORK
YOU ARE INVITED TO JOIN THIS VERY OPERATION LMS LIFELINE
The Rocky Mountain Patient/Family Support Networkcomes together to share perspectives in treatment and the cancer journey itself, survivorship, and wellbeing throughout the journey. Helpful tips shared, coming together to help one another – peer to peer -is what makes this Leiomyosarcoma Lifeline Support Group very special.
Learning about and participating in the Foundation’s many information session opportunities, in addition to medical advisory support, coping and anxiety coaching sessions the ABC’s of diagnosis and treatment, the LMS Lifeline Buddy Program, and so much more (refer to the NLMSF brochure) offers advocacy support to the patient and families.
WHAT IS LEIOMYOSARCOMA?
Leiomyosarcoma (MS) is a very rare cancer -a SARCOMA subtype. Sarcomas are only one percent of all cancers.Often misdiagnosed.Research is underfunded Sarcoma is the least funded of all cancers.
Leiomyosarcoma is 17 – 20% of all sarcomas and therefore designated are “rare.”This disease can be found anywhere on the body in the connective tissues such as smooth muscles, fat, nerves, deep skin tissues, blood vessels, bones, and cartilage.
This disease often metastasizes to the lung, liver, spine, and now the brain as well.Average survival rate from initial diagnosis:5 years.
The National Leiomyosarcoma Foundation was launched in 2001 to support patients and families with Leiomyosarcoma, as well as funding LMS research.
Patients and families came together to be together in support and advocacy for this disease – The only Foundation in the USA for the LMS Community.
FAST FORWARD to today -the Foundation is robust in its annual patient education programs, virtual programs (since COVID), and annual funding of LMS specific research projects, well vetted by a special Executive Committee of the Foundation -research oncologists reviewing all incoming grant proposals and advising the Foundation for appropriate funding.
The Signature Program of the Foundation is the INTERNATIONAL LMS RESEARCH ROUNDTABLE -launched in 2019, and now 128 research members strong!
Four workgroups focus on goals throughout the year as part of the Roundtable initiative, with an annual meeting to bring the “Team Science” global scientific think tank approach to prioritizing research initiatives that can advance and accelerate treatment options for this disease.
“OPENING DOORS TOGETHER – WITH THE POWER OF PROGRESS”
The Foundation’s Mission and Passion:To inform, inspire, Empower through Education /Support / Advocacy / Research